Curing Ollier Disease and Maffucci Syndrome
Our vision is a future where Ollier disease, Maffucci syndrome and related chondromas are relics of the past.
We believe everyone has a universal right to live their best life through quality care and effective treatments.
Our Organization
We are patients, parents, scientists, medical specialists and compassionate humans. Our mission is to eradicate Ollier and Maffucci disease and related chondromas by accelerating research, fostering collaboration, and empowering those affected.
Take Action
Ready to make impact? We cannot achieve our goals alone
We need your donations or your expertise to assist in securing the cure!
We have 3 goals:
Create a global patient registry of all people affected by Ollier, Maffucci, and related chondromas.
Raise $1M to fund research over the next 18 months for Johns Hopkins and other institutions.
Develop a cure and improve patient care programs by collaborating with public, private and pharmaceutical organizations.